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Down Syndrome Guild of Greater Kansas City

5960 Dearborn Street Ste. 100
Mission, KS 66202
913-384-4848 Phone
913-384-4949 Fax
info@kcdsg.org

Parents who have experienced heart surgery have some wonderful advice for you to consider. Please review DSG's Heart to Heart Brochure for helpful tips and suggestions before heading to the hospital. You may find it comforting to know that research shows children with Down syndrome have better heart surgery outcomes. 

DSG will gladly match your family with another family who has experienced heart surgery should you have any questions or support needs. We will also visit you in the hospital and provide a meal voucher stipend to help you cover the cost of meals while you are in the hospital. Please contact our office at 913-384-4848 or info@kcdsg.org if you would like to request a parent to parent match or meal voucher.

DSG extends our sincere thanks to Lily's family, photographer Muffet Petrehn and Children's Mercy Hospital for allowing us to share this video.

Eli's Heart seeks to help families with the travel expenses (airline tickets, hotels, gas, Ronald McDonald house charges, etc.) associated with getting their babies’ hearts repaired. Learn more and apply for assistance by visiting Eli's Heart

Helpful Resources

Please explore some of the following resources which can help you prepare for heart surgery.

Online Support Group

Down's Heart Group - UK

Mended Hearts

Kids with Heart

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