About Down Syndrome
About DSG
adult event
Apps & Technology
Awareness
Calendar
Change Attitudes
Classroom Support
Community Groups
Companies and Organizations
Conferences / Seminars
Connections Newsletters
CONTACT US
Correct Language
Curriculum Support
Dad's Corner
Discussion Forums
DSG Email Blasts
Education
Family Support
FAQ's
First Responders
For Educators
For Employees
For Employers
For Medical Professionals
For Professionals
For Therapists
Give to DSG
Guardianship
Health
Health Needs
Help DSG
Helpful Links
HIRED
History
Home
Homework Tips
IEP
Inclusion
Inclusion
Inclusion Solutions
Just Like You
Learning Profile
Learning Program
LP Curriculum
Media
Myths and Truths
News
Opportunities
Parent-s-Day-Out
Partners
Past Conferences
Photo Gallery
Programs and Services
Register Here
Research
Resources
S.T.A.R.S.
Selecting Childcare
Services for Schools
Siblings
Step Up Walk
Success Stories
Testimonials
Transition
Transition Resources
Upcoming Events
Volunteer
Welcome to Holland

Close

 

Dear Future Mom: March 21st, World Down Syndrome Day

Calvin (3).jpg

 new-parent-pic-2.png

IMG_2588b.jpg

  2011_02_06 Brynnlie Newborn Photos 009.jpg

  Henry Ninemire 1.jpg

Claire Bruns Lincoln NE 7.jpg

 

Skyalr-Hays-10.jpg

 

Welcome expectant and new parents!

We are sure you are experiencing a range of emotions as you adjust to the diagnosis of Down syndrome. We invite you to contact our organization to offer you support. Receiving a diagnosis that your baby will have Down syndrome can be overwhelming.  The following resources are intended to help new or expectant parents learn more about the condition and provide accurate and up to date information about their baby's future. We hope these resources will help families understand how having a child with Down syndrome can enhance the family. DSG offers quarterly support breakfasts for families adjusting to the diagnosis.  

Contact info@kcdsg.org to be added to our mailing list, to request a welcome basket and receive Family and Friends support packets, to request a parent to parent match or to receive a support breakfast invitation. 

Download the Welcoming a Newborn with Down Syndrome book here. This book offers support and accurate, reliable information to the new parents of a baby with Down syndrome. The book covers topics like breastfeeding, adjusting to a diagnosis, preparing siblings, understanding medical issues, preparing for the future, and, most importantly, it shares diverse stories about the daily lives of families whose children have Down syndrome at different ages. 

 

 

Additional Resources

Download a digital copy of the Understanding a Down Syndrome Diagnosis prenatal booklet which has accurate, balanced, and up-to-date information about the condition along with helpful resources.

The Light at the End of the Tunnel brochure comprises stories from other prenatally diagnosed couples so you can learn what information was helpful to them.  Watch a video designed for expectant parents seeking more information. You may also wish to visit the Brighter Tomorrows  or National Down Syndrome Congress expectant parent websites to learn more.  Watch a video to learn more about adoptions of children with Down syndrome.

Please read DSG's award winning New Beginnings Parent Magazine for inspiration and guidance on your journey.  You may also enjoy reading the National Down Syndrome Society's Promising Future Together Booklet or a new parent guidedisseminated by the Down Syndrome Association of the UK.  Read What Parents Wished They'd Known when they received the diagnosis their child had Down syndrome for some interesting insights.

Down Syndrome Pregnancy is a wonderful resource which walks expectant couples through their pregnancies and provides many resouces along with the ability to connect with other parents who have walked in your shoes. You can download a free e-book at this site as well.

DSG's New Beginnings Magazine is filled with stories from families who have taken the same journey you are on now. We hope you will find the information enclosed valuable and fill out the response card on the back page and mail it in to be added to our mailing list.

Babies with Down Syndrome book is a guide for new parents that covers all aspects of care for babies and young children with Down syndrome. It includes daily care, family life, intervention, education and legal and medical issues. Please email: info@kcdsg.org with your mailing information if you would like a complimentary copy of Babies with Down Syndrome mailed to your home.

Diagnosis Down Syndrome: This Web site’s purpose is to inform you of the life realities that a person with Down syndrome can look forward to today which includes stories and photos from parents of children with Down syndrome.

New parents also find this "Welcome to Holland" story very helpful in artculating how they feel about a diagnosis.

DSG Family featured in
FOX 4 News Story
on Prenatal Testing

DSG parents Travis and Joy Palangi, proud parents of Ella, are interviewed regarding their experience with prenatal diagnosis.  The Palangi's learned at 5 months along in their pregnancy they would be welcoming a baby girl with Down syndrome.  They became involved with the DSG and learned firsthand  the many joys of parenting a child with Down syndrome which made welcoming their daughter a wonderful experience.

Feel free to contact DSG with ANY questions! We are here for you. We can match you with other parents who have walked in your shoes, refer you to commmunity based service providers, lend you books and videos from our lending library and deliver a welcome basket full of resources. For more information contact 913-384-4848 or info@kcdsg.org.

 

 

 

 

 

 

 

 

 

Down Syndrome Guild of Greater Kansas City

5960 Dearborn Street, Suite 100
Mission, KS 66202
913-384-4848 Phone
913-384-4949 Fax
info@kcdsg.org

New Parent Basket.jpg

Request a new parent basket today by contacting DSG at info@kcdsg.org!