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Choosing a school

 Watch this presentation to help you choose a school for your child with Ds.

 

Transition

 

You can count on DSG to be supportive, informative and there for your family. As we grow as a community, we are stiving to provide timely information and support in transition planning for our children with Down syndrome. 

The following state specific sites help navigate through the transition process.  While each state has some unique issues; both states have information and tips applicable to all.

Read this article about young man in Maryland who participated in a collaborative interagency, interdisciplinary approach to transition from adolescence to adulthood.

Federal Resources

 

Disability Planner: Benefits For A Disabled Child 

Supplemental Security Income

Kansas

The Kansas Department for Aging and Disability Services (KDADS) Information for the state of Kansas for application for state benefits

Building a Better Life is a guide for families of young adults with disabilities who are transitioning into adult life. Building a Life can help you help young adults move toward independence. (Kansas)

Missouri

Division of Developmental Disabilities (DD)  Information for the state of Missouri for application for state benefits

Jackson County Developmental Disabilities Servicesis a political sub-division of Jackson County that provides funding and services for Jackson County citizens with developmental disabilities

Disability Benefits 101 gives you tools and information on health coverage, benefits, and employment. You can plan ahead and learn how work and benefits go together (Missouri)

10 Tips to Help Your Child's Transition to Adulthood

Transition Planning for Life amd Transition Planning: Setting Lifelong Goals  Wrightslaw helps parents start thinking about the transition to adulthood early. Your child must develop the skills he needs to become as independent as possible

Transition Bootcamp  Session One: The Nitty Gritty from KCDSG focuses on an overview of transition, developing self advocacy and the IEP transition plan.

Transition Bootcamp Session 2: What Happens After the Bus Stops Coming Presentation focuses on : Work Options, Post-Secondary Education, Volunteer and Work Opportunities, Day Programs, Break-Out Sessions and Provider Fair with Relevant supports and services

Transition Bootcamp Session 3: Moving Towards Independence Moving out and living independently. Focus on discussion of living arrangements, pros & cons of living options, and types of living arrangements.

 

education

 

The Down Syndrome Guild of Greater Kansas City offers resources for parents and educational professionals to better serve children with Down syndrome. We offer a variety of publications and trainings to assist educators. Please review our most recent issue of DSG's Inclusion Solutions Newsletter which is chock full of tips and tools.

 

For parents of children with special needs March and April is IEP season when a number of parents have IEP meetings with the schools and the madness truly begins

  • What do I include in my child’s IEP?
  • Do I need to prepare for war?
  • Am I prepared to present my child’s case
  • Should I bring an advocate?
  • How will I know if the school is following the proper guidelines?

Here are 13 articles that will help you get ready for an IEP meeting:
13 Informative IEP articles you need to read

 

Inclusion

Including Students with Down Syndrome with their Typical Peers

About Down Syndrome

The Inclusive Class  Great site for inclusion information and updates. Check out the Inclusive Class Binder to save yourself time and energy and get great practical hints!

Inclusion Works!  Tips & Resources

Inclusion and Segregation Study

Inclusion Study

Guide for Teens and Adults with Down Syndrome

New Roles for Educators in Inclusive Environments

 

iEP Toolkit

 The Down Syndrome Center in Cincinnati has developed an important IEP Toolkit to help parents become informed and collaborative members in the IEP process. Download the toolkit here.

Tips for a Successful IEP meeting  Here are some suggestions to help you feel more at ease and able to participate as a full member of the team that plans your child's special education program

 

The following Speech and Language Resource Guides for individuals with Down syndrome have been generously provided by Dr. Libby Kumin and Loyola College of Maryland.

 

Basis for Speech, Language and Communication (PDF)
First Words and Phrases (PDF)
Infants and Toddlers (PDF)
Preschool through Kindergarten (PDF)
Childhood Apraxia (PDF)
School age children (PDF)
Adolescents (PDF)
Adults (PDF)
Oral Motor Skill Difficulties (PDF)

 

Watch a powerful video about people with Down syndrome.

 

Nova Scotia Down Syndrome Society Belong Video.

 

Learn more about what Special Education offers your child by reading the Missouri Parent's Guide to Special Education.

Spanish video explaing IEP's.

Ask Questions, Get Services  Parents, educators, advocates, and attorneys come to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities.

Developmental Milestones  Here are just a few of many milestones a typically developing child reaches in the first year of life and beyond from NICHCY

The Friendship Circle App Review will give you the ability to browse through hundreds of special needs apps in such categories as: Communication; Social skills; Life skills; Behavior; Education; Scheduling; and Games

 

Down Syndrome Guild of Greater Kansas City

5960 Dearborn Street, Suite 100
Mission, KS 66202
913-384-4848 Phone
913-384-4949 Fax
info@kcdsg.org